Resources in Our Area

Delhi - Hepatitis C & Hepatitis B Support Group (Including Family, Friends, Medical)

O'Conner Hospital Conference Room - Directions
Rt 28
Delhi, NY

Meets: 2nd Thursday Of Every Month 6:00-7:00pm (Longer If Needed)

Meetings open to all living with HCV and/or HBV, their families, friends and support including medical personnel. These meetings respect confidentiality and ask participants to do the same. As weather does not always permit, please call ahead to make sure meetings are taking place. Refreshments provided by O'Connor Hospital.

Contact Lillian de Mauro for more information.

Phone: 607-746-7199
Web: http://linux.hcvadvocate.org/cgi-bin/sg_lookup3.cgi?id=95162
Email: lilliandem@gmail.com

Geneva - Finger Lakes Hepatitis Support Group

- Directions
160 N. Main St
Geneva, NY

Meets: Fourth Friday Of Every Month At 7:00 P.M.

Contact Preston Dinkel for more information.

Phone: (315) 789-4307

Hepatitis C Support Group

- Directions
111 Central Ave
Newark, NJ 7102

Meets: Last Wednesday Of The Month At 12 Noon

There will be no support group meeting in the summer, but meetings will resume in September. If you are interested in participating please call Nancy Scangarello ahead of time to confirm the fall dates.

Contact Nancy Scangarello for more information.

Phone: 973-877-5645

Hepatitis C Support Group

Methodist Hospital - Directions
506 6th Avenue
Brooklyn, NY 11265

Meets: 3rd Wednesday of each month from 6:00 - 7:30 pm

New Group in Brooklyn! Methodist Hospital Hepatitis C Support Group - in the executive dining room on teh ground floor adjacent to the cafeteria. Facilitated by Smruti Mohanty, MD, MS, FACP, Chief, Division of Gastroenterology and Hepatology. Will meet regularly on the 3rd Wednesday of each month. Open to all Hepatitis C Patients. Contact: srm9006@nyp.org.

Contact Smruti Mohanty, MD, MS, FACP, Chief, Division of Gastroenterology & Hepatology (Facilitator) for more information.

Email: srm9006@nyp.org

Long Island (Hepatitis C)

North Shore University Hospital at Plainview - Directions
888 Old Country Road
Plainview, NY

Meets: Meets first Monday of each month, 7pm - 9pm

Meeting Details: Meeting is in basement in Lecture Room A. Schedule changes may occur to accomodate certain holidays.

Contact Gina Pollichino, RN (American Liver Foundation) for more information.

Phone: (631) 754-4795
Email: gpollichino@yahoo.com

Long Island (PBC)

*Not sponsored by ALF

Contact Marilyn Klainberg for more information.

Contact Marilyn Klainberg for more information.

Phone: 516-877-4568

Long Island - (Hepatitis C Courage Group)

Meets: Meets Last Thursday Monthly; 7:00pm

Contact Gina Pollichino, RN for more information.

Phone: 631-754-4795

Long Island - (Hepatitis C)

Huntington Hospital

Contact Gina Pollichino, RN for more information.

Phone: 631-754-4795

NJ - Brick (Transplant Support Group)

Ocean Medical Center - Directions
425 Jack Martin Blvd
Brick, NJ 08724

Meets: 1st Thursday of every month from 7:00 - 8:00 pm

General transplant support group that includes liver as well as heart, lung, kidney, etc.

Contact Sue for more information.

Phone: 732-477-0704

NJ - St Michael's Educational Lectures

Newark, NJ
Newark, NJ

Meets: Noon-2pm Every other Wed (except July and August)

Eduactional Lecture - Topics changes every monthly

Contact Liver Center for more information.

Phone: 973-877-5056 (973-877-5105)

NJ - Voorhees (Support Group)

Barry Brown Health Educational Center - Directions
106 Carnie Blvd
Voorhees, NJ

Meets: 2nd Tuesday Of The Month 7-9:30pm

Contact Phone: Henry Hager, Jr. for more information.

Phone: 856-983-8247
Web: http://www.nepatsg.org/hepatitis

NJ - Wyckoff (Caregiver Support Group)

Christian Health Care Center - Directions
301 Sicomac Road
Wyckoff, NJ 07481

Meets: First Tueday of the month, 12:00-1:00pm

Open to all caregivers.

Contact Kerri Sherer for more information.

Phone: 201-848-5830

NY - Albany (Hepatitis C Support Group)

Albany Gastroenterology Consultants, Pc - Directions
1375 Washington Ave
Suite 101
Albany, NY 12206

Meets: Meets Once Per Month. Check Website For Date/Time & Any Changes.

There will be no support group meetings during the summer months of July and August. We will begin the meetings again in September.

Contact Yvonne Fuller for more information.

Phone: 518-438-4483
Web: http://www.albanygi.com

NY - Binghampton (Hepatitis C)

Trinity Memorial Church
44 Main Street
Binghamton, New York

Meets: Every Other Tuesday at 6:00PM

Contact Saleem Diaz for more information.

Phone: 607-798-1706
Email: sdiazc@stapinc.org

NYC - (Newly Diagnosed Cancer)

Herbert Irving Pavilion
161 Fort Washington, Garden Conference Room, Lower Level

Contact Lynette Williams, LMSW at (212)-305-5274 or Madeline Encarnacion at (212) 305-6320 for further information. Support group is bilingual! There will be no meetings for the months of June, July or August but please check back in September for a new schedule.

Contact Lynette Williams, LMSW, or Madeline Encarnacion for more information.

Phone: 212-305-5274 (212-305-6320)

NYC - Brooklyn (Hepatitis C Support Group)

New York Methodist Hospital - Directions
Carrington Pavilion Entrance, 506 Sixth Street between 7th and 8th Avenues (See Details Below)
Brooklyn, NY

Meets: Meets First Tuesday of each Month 6:00 PM to 7:30 PM

Getting There: Executive Dining (next to Hospital Cafeteria) Carrington Pavilion entrance 506 Sixth Street between 7th and 8th Avenues Park Slope, Brooklyn; Public Transportation: F Train to Seventh Avenue. B67 (Seventh Ave.), B63 (Fifth Ave.), B75 (Smith St.), and B69 (Vanderbilt Ave.)

Refreshments will be served.

Contact Betty Vega for more information.

Phone: (718) 780-5367
Email: BettyV444@aol.com

NYC - Brooklyn (Hepatitis-C)

Kings Pharmacy - Directions
357 Flatbush Avenue
Brooklyn, NY

Meets: Meets fourth Wednesday of each Month, 5:30-7:00pm

• Do you have questions about your medications?
• Do you want to improve your quality of life?
• Do you want to hear & share ideas with other people in your condition?

Directions:B/Q train to 7th Avenue or 2/3 train to Grand Army Plaza or B41 bus to Flatbush and 7th Avenue

Next Meeting: April 2nd.

Refreshments will be served!!!

**Free and open to the public.

Contact Sweta Chawla for more information.

Phone: 718-230-3535 ext 23

NYC - Downtown Manhattan Hepatitis C Support Group

Hudson Park Public Library - Main Fl - Directions
66 Leroy Street, New York, NY 10014
New York, NY

Meets: Meetings are from 6-8 PM -- Entry doors close at 7PM

Anyone impacted by or interested in Hepatitis C

Contact Lillian de Mauro for more information.

Phone: 607-746-7199
Email: lilliandem@gmail.com

NYC - Manhattan (HCV Support Group)

Lower East Side Harm Reduction Center
25 Allen Street
New York, NY 10002

Meets: Wednesdays 4:00 - 5:00 pm

Contact Johnny Benjamin for more information.

Phone: 212-226-6333 ext 119

NYC - Manhattan (Hep C Treatment Group in Spanish)

CitiWide Harm Reduction HCV Groups - Directions
226 East 144th Street
Bronx, NY 10451

Meets: Every Thursday: 2pm -3pm

Contact Andres Andino for more information.

Phone: (718) 292-7718 ext. 259

NYC - Manhattan (Hep C Treatment Group)

CitiWide Harm Reduction HCV Groups - Directions
226 East 144th Street
Bronx, NY 10451

Meets: Every Friday: 10am- 11am

Contact George Santana for more information.

Phone: (718) 292-7718

NYC - Manhattan (Hepatitis B)

New York Public Library - Directions
33 East Broadway
3rd Floor
New York, NY 10013

Meets: First Tuesday of each month, 2:00-3:00pm

Chinatown Asian Liver Health Support Group

HBV Awareness, Education and Support Group in Chinese Language (Dialect for this month is Mandarin/Fujinese)

Millions of Chinese around the world are infected from Hepatitis B. Most people do not even know they are infected, but you should know some important facts. Please contact your friends, family and other people in your community to share this information.

• Hep B is not genetic, but caused by a virus.
• There is a simple method blood test for Hep B.
• There is a safe vaccine for immunization.
• There are number of treatment options available today.

*Open to the public. Refreshments provided.

Contact Arline Loh for more information.

Phone: 646-962-4713
Email: arline.loh@gmail.com

NYC - Manhattan (Hepatitis B)

Weill Cornell Medical Center - Directions
1305 York Avenue (at 70th and York), 2nd Floor
New York, NY 10021

Meets: First Thursday of each month; 4:00-5:00pm

Millions of Asian and Pacific Islanders; Immigrants/Refugee of Sub-Saharean Africa; Amazon Basin; Eastern European and Middle Easterner are infected from Hepatitis B. Hepatitis B is a silent killer. Most people do not even know they are infected, but you should know some important facts. Please contact your friends, family and other people in the community to share this information.

• Hep B is not genetic, but caused by a virus.
• There is a simple method blood test for Hep B.
• There is a safe vaccine for immunization.
• There are number of treatment options available today.

*Open to the Patients. Refreshments provided.

Contact Arline Loh for more information.

Phone: 646-962-4731
Email: arline.loh@med.cornell.edu

NYC - Manhattan (Hepatitis C Positive Living Group)

CitiWide Harm Reduction HCV Groups - Directions
226 East 144th Street
Bronx, NY 10451

Meets: Every Wednesday: 2:30pm – 3:30pm

Contact Fred Johnson for more information.

Phone: (718) 292-7718 ext. 228

NYC - Manhattan (Hepatitis C)

Center for the Study of Hepatitis C
1305 York Ave at 70th and York, 2nd Floor Patient Resource Center
New York, NY

Meets: First Wednesday of the month; 4:00-5:00pm

Contact Mary Olson for more information.

Phone: 646-962-4742

NYC - Manhattan (Hepatitis C)

Mount Sinai Medical Center, Guggenheim Pavillion - Directions
100th Street and Madison
2nd Floor, Room 2C
New York, NY

Meets: Third Wednesday of each month; 6- 7:30 p.m.

Contact Viktoriya Khaitova for more information.

Phone: 212-659-8928

NYC - Manhattan (Hepatitis C)

Weill Medical College of Cornell University/New York Presbyterian Hospital - Directions
450 East 69th Street and York Ave
New York, NY

Meets: meets first Wednesday monthly; 6-7pm

Contact Mary Ahern, NP for more information.

Phone: 212-746-4338

NYC - Manhattan (Hepatitis C)

Montefiore Hospital - Directions
3400 Bainbridge Ave
2nd Floor Conference Room,
Bronx, NY 10467

Meets: Third Thursday of the Month, 6-7 PM

Contact Mara Tushaj for more information.

NYC - Manhattan (Hepatitis C)

New York Harm Reduction Educators - Directions
953 Southern Blvd.
Room #302
Bronx, NY 10459

Meets: Every Wednesdays at 11 AM

Contact Donald Davis for more information.

Phone: (718) 842-6050

NYC - Manhattan (HVC Support Group)

Positive Health Project
301 West 37th Street
New York, NY 10018

Meets: Every Friday; 1:00-2:00pm

Contact Yvette Gonzalez for more information.

Phone: 212-465-8304

NYC - Manhattan (L.O.L.A. Support Group)

New York Blood Center - Directions
310 East 67th Street
New York, NY

Meets: Third Wednesday monthly; 6-7:30pm

Phone: 718-892-8697

NYC - Manhattan (PBC Support Group)

Mt. Sinai Hospital- East Building - Directions
1425 Madison Avenue
Corner of East 98th Street, 11th Floor, Room 1184
New York, NY 10029

Meets: Thursdays

Topic: “How Endocrinologists Can Help the PBC Patient."

Contact Martin Goetz for more information.

Phone: 212-241-5735

NYC - Midtown Manhattan (NYU Hepatitis C Support Group)

New York University Medical Center - Directions
560 1st Ave. (between 30th and 31st) , Main entrance of NYU Medical Center
Smilo Conference # 1301
New York, NY

Meets: Monthly on Wednesday 6:15pm

Contact Ronni Marks for more information.

Phone: 212-889-5544

NYC - Post Transplant Support Group

New York Presbyterian Hospital - Milstein Hospital Building - Directions
177 Fort Washington Avenue
7 Hudson South - Reemtsma Conference Room 213
New York, NY

Meets: First and Third Thursday of every month, 10:00-11:30AM

The Post-Transplant Support Group meets twice a month to share experiences, ideas and mutual support.

Contact Aimee Muth for more information.

Phone: 212-305-1884

NYC - Pre-Transplant Educational Workshop

New York Presbyterian Hospital - Directions
1130 St. Nicholas Avenue
Room 114
New York, NY 10032

Meets: Thursdays from 3:00 - 4:30

Please contact Aimee Muth to confirm your attendance.

Contact Aimee Muth for more information.

Phone: 212-305-1884

NYC - Queens (H.E.L.P.P.)

NY Hospital of Queens, Flushing
Flushing, NY

Meets: Sunday afternoon monthly

Hepatitis Education Liver Disease Awareness Patient Support Programs (H.E.L.P.P)

Contact Teresa Abreu for more information.

Phone: 718-352-7772

NYC - Transplant Support Group

The Recanati/Miller Transplantation Institute at Mount Sinai Hospital - Directions
One Gustave L. Levy Place
New York, NY 10029

Meets: Thursdays 1pm

This support group is open to all patients and patient's family members who are pre or post liver and/or kidney transplantation. Entrance on 1468 Madison Ave.; (100th St. and Madison Ave.); Guggenheim Pavillion; Floor: 9 Center, Patient Lounge

Phone: (212) 241-7944

Staten Island - NY (HIV - HCV Coinfection Support Group)

Community Health Action of Staten Island HIV - HCV Coinfection Support Group - Directions
56 Bay Street, 6th Floor Conference Room
Staten Island, NY 10301

Meets: Fourth Thursday of Every Month, 1:00-2:00PM

Meeting is facilitated by Joe Grossman from the harm Reduction program @ Staten Island University Hospital.

Next Meeting: Thursday March 27th.

Contact Barbara Sullivan for more information.

Phone: 718-808-1314
Email: sullivan@sihealthaction.org

Transplant Support Organization Serving the NY of Westchester, Bronx, Putnam and Dutchess

Congregation Sons of Israel - Directions
1666 Pleasantville Road
Briarcliff Manor, NY

Meets: Every Third Wednesday of each month from September to June, 7:00-7:30PM Social Time, 7:30-9PM

Contact Rush Masry for more information.

Phone: 914-941-2616
Web: www.transplantsupport.org
Email: tso97@optonline.com

TRIO - Transplant Recipients International Organization

Meets: Second Wednesday every month from September to June, 7:30pm

Individuals who have undergone transplant surgery provide support for other transplant candidates, recipients, their families and donor family members.

TRIO Long Island

Michael Sosna, President
145 Community Drive, Manhasset, NY- directly across from North Shore University Hosp.
516-942-4940

TRIO Manhattan

Larraine DePasquale, President
New York Blood Center, 310 E. 67th Street. NYC
718-597-5619 or www.trio-manhattan.org or mailto: triom@aol.com

Westchester County (Hepatitis C)

Westchester Medical Center

Meets: every other Wednesday; 6-8pm

Contact Mimi Greenman for more information.

Phone: 914-493-7641

Western NY PBCers Support Group

- Directions
113 Creston Court
Rochester, NY 14612

Meets: meets formally twice yearly - Spring & Fall

A support group for people diagnosed with Primary Biliary Cirrhosis (PBC). Although we only meet as a group twice a year we do meet with new members at anytime needed and always take phone calls and questions.

Contact Carol Roberts (PBCers Organization) for more information.

Phone: 585-225-7845
Web: www.pbcers.org
Email: wnypbcsupport@rochester.rr.com

Williamsville - Hepatitis C Support Group

Erie Community College, North Campus, School Of Dental Hygiene-Community Room - Directions
Main and Youngs Rd
Williamsville, NY

Meets: 2nd Tuesday Of The Month 6:30 - 8:00 Pm

Currently on hold, please contact Karen for more information.

Contact Karen Andres for more information.

Phone: (716)631-2517

INTRODUCTION TO CLINICAL TRIALS – An American Liver Foundation Guide

The American Liver Foundation’s Introduction to Clinical Trials guide (link to http://www.liverfoundation.org/support/supportguides/) contains information on what a clinical trial is, who is involved, how the process works, potential risks and benefits, and much more.

For information on clinical trials in your area:

• Search the National Institutes of Health’s clinical trials website
• Talk to your healthcare provider about clinical trials that you may be eligible for
• Contact local medical institutions to learn about upcoming clinical trials

Web: http://www.liverfoundation.org/support/supportguides/

LIVER TRANSPLANT

The American Liver Foundation’s website has general information on liver transplants.

For information on transplant centers in your area, visit the Organ Procurement and Transplantation Network’s (OPTN) website.

Web: http://www.liverfoundation.org/abouttheliver/info/transplant/

Centers for Disease Control and Prevention (CDC)

National HIV and STD Testing Resources for HIV and STD tests and Hepatitis B and HPV Vaccines

Web: http://www.hivtest.org/

Free and Confidential Clinics for HIV and STD Screening

New York City Department of Health and Mental Hygiene (NYC DOH)

Phone: 311
Web: http://www.nyc.gov/html/doh/html/std/std2.shtml

NYC Viral Hepatitis Services Locator

Office of Viral Hepatitis Coordination - New York City Department of Health and Mental Hygiene (NYC DOH)

Web: https://a816-healthpsi.nyc.gov/DispensingSiteLocator/mainView.do

Scientific Sessions of Continuing Education

A seven day CME cruise sponsored by Columbia University College of Physicians and Surgeons

A seven day CME Mediterranean cruise on MSC “The Splendida” sponsored by Columbia University College of Physicians and Surgeons European Destinations: Genoa (Italy), Rome, Messina (Sicily), Tunisia (North Africa), Malta, Marseille (France),Barcelona (Spain), and back to Genoa Ship Registry: Panama.

Contact JoAnn Goldenberg for more information.

Phone: (973) 477-7758
Web: www.liveronsea.com