American Liver Foundation - Hawai`i Chapter Liver Buddies Patient Mentoring Program
Call for details
Meets: Varies - call for details
Nothing can compare to the comfort you receive from someone who knows exactly what you're going through. While you're undergoing treatment for liver disease or are waiting for a liver transplant, you can rest assured that there are others who have had the same experiences as you and are ready and willing to support you. We're ready to help. If you or someone you know would like to be in touch with a Liver Buddy, please call us at the number listed below.
Contact the Hawai`i Chapter Office for more information.
Phone: (808) 737-0400
Web: www.liverfoundation.org/hawaii
Email: American Liver Foundation - Hawai`i Chapter Liver Buddies Patient Mentoring Program
Hepatology Support Group
UCSD Hospital - (Directions)
200 West Arbor Drive, 11 Floor Conference Room
San Diego, CA 92103
Meets: Third Thursday of every month - 6:00-7:00 pm
The department of Hepatology offers support groups for patients and their families. Support groups can help reduce anxiety and depression. You will be able to meet others with similar thoughts and concerns, and realize you are not alone. Knowledgeable staff, who can help provide support and education facilitates the groups.
Reservations are Required! Call 619-543-2392 to register.
Phone: 619-543-2392
HepCats (Hepatitis C & B Support Group in Honolulu)
Life Foundation - (Directions)
677 Ala Moana Blvd., Suite 229
Honolulu, HI 96813
Meets: Third Thursday every month, 6:30 p.m.
Located in the Gold Bond Building, diagonally across from Comp USA. Parking along Keawe and Coral Streets.
Contact Ken Akinaka (The Hepatitis Prevention, Education, Treatment, and Support Network of Hawaii) for more information.
Phone: (808) 221-6204
Email: HepCats (Hepatitis C & B Support Group in Honolulu)
Hilo, Hawaii:
Hilo Family Health Center
Hilo Family Health Center - (Directions)
1178 Kinoole Street, Building B
Hilo, HI 96720
Hepatitis B & C education, support groups and treatment. Marshallese & Chuukese interpreters available. Call for more information, including dates and times for support groups.
Contact Charlotte Grimm (Director of Clinical Operations) for more information.
Phone: 808-934-3217
Web: www.bayclinic.org
Email: Hilo Family Health Center
La Jolla
Green Hospital, Scripps Clinic - (Directions)
10666 N. Torrey Pines Road
La Jolla, CA 92037
Contact Richard Helman (Scripps) for more information.
Phone: 858-554-8156
San Diego - Liver Transplant
UCSD Medical Center - (Directions)
200 W. Arbor Drive
On 8th Floor, Room 8-308
San Diego, CA
Meets: Meets third Thursday of every month, 1:30 PM - 2:30 PM
Meeting takes place on the 8th Floor in Room 308
Contact Michelle Morrison, Liver Transplant Social Worker (UCSD) for more information.
Phone: 619-543-8242
San Diego - Transplant Caregiver Support Group
UCSD Medical Center - (Directions)
200 West Arbor Drive
San Diego, CA 92103
Meets: Meets second Wednesday of every month at 12:00 PM
Meeting takes place on the 8th Floor in Room 308
Phone: 619-543-8242
No. County:
Scripps Coastal Medical Center
Vista - (Directions)
130 Cedar Road, 3rd Floor, Conference Room #1
Vista, CA 92056
Meets: Times vary, typically Thursday's from 6:30-8:30 pm
Next meeting will be held December 4, 2008
2009 Schedule:
1/22/09; 2/26/09; 3/26/09; 4/16/09; 6/18/09; 7/16/09; 8/27/09; 9/24/09; 10/22/09; 11/19/09
Light refreshments will be served.
Please call to register: Sarah Aberle, MPH, RN, CDE at 760-806-5870
or Susan Pardue, Dept. Secretary at 760-806-5881.
Contact Sarah Aberle, MPH, RN, CDE for more information.
Phone: 760-806-5870
Email: Scripps Coastal Medical Center
ClinicalTrials.gov
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.
San Diego:
Medical Associates Research Group - HCV & HBV Studies
San Diego - (Directions)
8008 Frost Street, Suite 200
San Diego, CA 92123
The Medical Associates Research Group is a local center in San Diego with an established reputation for hepatitis clinical trials. Currently participating in five different HCV trials with both protease and polymerase inhibitor drugs. These trials are for genotype l, treatment naive volunteers, as well as those who have failed previous therapy. In addition they are enrolling participants in a HBV study.
Contact Dianne Simpson Tuohy, MS, CCRC for more information.
Phone: 858-277-7177
Web: www.marginc.com
NIH Clinical Trials
UCSD Clinical Trials
LifeSharing - A Donate Life Orgnanization
San Diego
3465 Camino Del Rio South, Suite #410
San Diego, CA 92108
Mission:
Lifesharing Community Organ and Tissue Donation is committed to the life-saving and life-enhancing efforts of transplantation. We strive to be the leader in organ and tissue donation through education, collaboration, and the provision of quality service.
Founded in 1984 as a division of UCSD Medical Center, Lifesharing is one of 58 regional non-profits dedicated to the life-saving and life-enhancing benefits of organ and tissue donation. A federally designated organization, we provide organ recovery, donor family support, and educational services for the diverse population of approximately 3 million people in San Diego and Imperial Counties. Organ and tissue procurement services supply twenty-six donor hospitals and four local transplant centers with transplantable organs for the ever growing waiting list of 1,600 San Diego patients and 90,000 patients nationwide.
Regulation by the federal government through the Department of Health and Human Services (DHSS) monitors Lifesharing Organ Services. The Organ Procurement and Transplant Network (OPTN) have been designated by DHSS to provide
oversight and policy guidelines to all of the Organ Procurement Organizations (OPO) in the United States. To continue as a designated OPO, Lifesharing must meet donor and organ recovery metrics set by DHSS.
As a Donate Life Organization, Lifesharing is a member of the United Network for Organ Sharing (UNOS). This private, nonprofit organization operates the national organ allocation system. Lifesharing allocates organs according to UNOS guidelines to ensure equitable organ distribution in our community. Lifesharing is also accredited by the Association of Organ Procurement Organizations (AOPO) - a professional association providing national guidelines for OPOs. In addition to the Food and Drug Administration, state and local Health Departments also regulate Lifesharing Tissue Service.
Contact Sharon for more information.
Phone: (619) 521-1983
Web: http://www.lifesharing.org/
Transplant Institute
Hawaii Medical Center - (Directions)
2226 Liliha St.
Weinberg Outpatient Building Level B1
Honolulu, HI 96817
Contact Jane Lee, RN, BSN (Transplant Institute and Hawaii Medical Center) for more information.
Phone: (808) 547-6385
Email: Transplant Institute
Chronic Hepatitis C Education Information Class
Center for Health Promotion, Euclid Health Center - (Directions)
292 Euclid Avenue, Suite 122
(between Imperial Ave. & Market St. - at the end of Euclid Ave. trolley station)
San Diego, CA 92114
Meets: 4:00 pm - Fourth Wednesday of every month
Bring your caregiver, spouse, or partner.
Free presentation and duscussion:
- Common side effects
- Managing side effects
- dose preparation and self injection
- Insurance questions answered
You must register by calling:
Phone: 619-572-8644
Hep. C informational Classes
Mercy Hospital
San Diego
Meets: Tues. 6-8 pm and Sat. 9-11 am
Please call CVS Pharmacy for more information or to sign up to attend the class.
This class will cover information on Hep. C such as medications, side effects and symptoms, etc.
Contact CVS Pharmacy for more information.
Phone: 619-291-7377
Liver Center
Hawaii Medical Center - (Directions)
2228 Liliha St., Suite 306
Honolulu, HI 96817
Contact Naoky Tsai, MD (Liver Center at Hawaii Medical Center) for more information.
Phone: (808) 547-6541
Partnership for Prescription Assistance
PPA's main focus is on uninsured populations, but underinsured populations can contact PPA as well. PPA networks with 475 plans in the US and has one application that can be completed by phone or online. Based on answers to the PPA application questions, the database does a search for matches between patient information/chronic medication needs and plan requirements/medications.
The PPA is then able to print the applications for the matched plans and sends them to the patient, who in turn send in the application(s) to the plan(s). Medications arrive in two weeks (on average.)
Phone: 1-888-477-2669
Web: www.pparx.org
Sharing Miracles
Web: http://www.sharingmiracles.com/
Together RX Access = Prescription Savings Program
Thousands of hardworking people like you are getting a break on the medicines they need. Apply by calling the 1-800 number or online - it takes only minutes.
You may be eligible. Here's how to qualify:
- Not eligible for Medicare
- No prescription drug coverage (public or private)
- Household income equal to or less than
- $30,000 for a single family
- $40,000 for a family of two
- $50,000 for a family of three
- $60,000 for a family of four
- $70,000 for a family of five
Families of six or more and residents of Alaska & Hawaii should contact Together RX Access for household income information. - Legal resident of the US or Puerto Rico
Phone: 1-800-444-4106
Web: www.TogetherRxAcess.com
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