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American Liver Foundation
1845 N Farwell Ave, Suite 312
Milwaukee, WI 53202
414-763-3435 Tel
414-961-7288 Fax


Dee Girard
Executive Director


American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
212-668-1000 Tel
212-483-8179 Fax

The Faces of Liver Disease


Havalah

Havalah Kolb's Story

Havalah Kolb was born in 2003. She was diagnosed with Biliary Atresia at 6 weeks old and underwent the kasai surgery. Her bili rubin doubled with the surgery and stayed there. It was considered a failed kasai and her doctors expected her to go into liver failure. Havalah didn't get better - but she didn't get worse. She was listed for liver transplant at 8 months.

Havalah had yellow skin and yellow eyes and we gave her high calorie formula through an NG tube overnight while she slept - in hopes that she would gain weight. She looked like a very sick little girl - but acted like a normal child.

Havalah got the call for transplant a few months past her second birthday. Post transplant she experienced a lot of complications including hepatic artery thrombosis and bile strcitures.

Havalah is almost 5 now and doing everything a normal child does. She takes swimming lessons and ballet and started school this year. She is a beautiful, charming little chatterbox and we appreciate every day we have with her.

Author: Kristen Wotruba-Kolb


What is Biliary Atresia?

Biliary atresia is a disease of the bile ducts that affects only infants. Bile is a digestive liquid that is made in the liver. It travels through the bile ducts to the small intestine, where it helps digest fats.

In biliary atresia, the bile ducts become inflamed and blocked soon after birth. This causes bile to remain in the liver, where it starts to destroy liver cells rapidly and cause cirrhosis, or scarring of the liver.

Page updated: August 23rd, 2012