Links to More Resources

Explore these links to find other organizations and resources that may help you.

Advocacy/Support Groups

Alagille Syndrome Alliance
www.alagille.org

Alcoholics Anonymous
www.aa.org

Alpha-1 Association
www.alpha1.org

Alpha-1 Foundation
www.alphaone.org

AlphaNet
www.alphanet.org

American Hemochromatosis Society
www.americanhs.org

Biliary Atresia and Liver Transplant Network Inc.
www.transweb.org/people/recips/resources/support/oldbilitree.html

Canadian Hemochromatosis Society
www.cdnhemochromatosis.ca

Canadian Liver Foundation
www.liver.ca

Children's Liver Alliance (Australia)
www.liverkids.org.au

Children's Liver Association for Support Services
www.classkids.org

Children's Liver Disease Association
www.childliverdisease.org

Children's Organ Transplant Association
www.cota.org

Gay Men's Health Crisis
www.gmhc.org

Gilbert's Web (United Kingdom)
www.gilbertsweb.co.uk

HCV Advocate
www.hcvadvocate.org

Hemochromatosis Foundation
www.hemochromatosis.org

Hep C Connection
www.hepc-connection.org

Hep C Alert
www.hep-c-alert.org

Hepatitis B Foundation
www.hepb.org

Hepatitis Foundation International
www.hepfi.org

Immunization Action Coalition
www.immunize.org

Iron Disorders Institute
www.irondisorders.org

Iron Overload Diseases Association
www.ironoverload.org

Latino Organization for Liver Awareness
www.lola-national.org

Liver Cancer Network
www.livercancer.com

Liver Health Today Magazine
www.liverhealthtoday.org

National Foundation for Infectious Diseases
www.nfid.org

National Network for Immunization Information
www.immunizationinfo.org

PBCers Organization
www.pbcers.org

Project Inform
www.projectinform.org

PSC Partners Seeking a Cure
www.pscpartners.org

Wilson's Disease Association
www.wilsonsdisease.org

Parents of Kids with Infectious Diseases
www.pkids.org

National AIDS Treatment Advocacy Project
www.natap.org

Vaccine Information for Public and Health Professionals
www.vaccineinformation.org

Sarcoidosis Awareness Network
www.sarcoidosisnetwork.info

PFIC Progressive Familial Intrahepatic Cholestasis - Resource for Pediatric Liver Disease
www.pfic.org

Alpha-1 Advocacy Alliance
www.alpha1advocacy.org

Liver Families
www.liverfamilies.org

Pulmonary Hypertension Association
www.phassociation.org

The Magic Foundation
www.magicfoundation.org

Online Services

Clinical Care Options - Hepatitis
clinicaloptions.com/hep

Hepatitis B Info (United Kingdom; sponsored by Bristol-Myers Squibb)
www.hepatitisinfo.co.uk

Hepatitis C - An Epidemic for Anyone
www.epidemic.org

Hepatitis C Home Test Kits
www.homeaccess.com/02/02

HIVandHepatitis.com
hivandhepatitis.com

Mayo Clinic - Hepatitis C Information
mayoclinic.com/health/hepatitis-c/DS00097

National Hepatitis C Coalition
www.nationalhepatitis-c.org

Transplant Experience
www.transplantexperience.com

TransWeb
www.transweb.org

Professional Organizations

American Association for the Study of Liver Diseases
www.aasld.org

American Society for Gastrointestinal Endoscopy
www.asge.org

Liver Transplant at Mayo Clinic
www.mayoclinic.org/liver-transplant

United Network for Organ Sharing
www.unos.org

American College of Gastroenterology
www.acg.gi.org

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition
www.naspgn.org

Journal of Pediatric Gastroenterology and Nutrition
www.jpgn.org

American Society of Transplantation
www.a-s-t.org

Government

Biliary Atresia Research Consortium - NIH
www.barcnetwork.org

Centers for Disease Control and Prevention - Hepatitis A
www.cdc.gov/ncidod/diseases/hepatitis/a/index.htm

Centers for Disease Control and Prevention - Hepatitis B
www.cdc.gov/ncidod/diseases/hepatitis/b/index.htm

Centers for Disease Control and Prevention - Hepatitis C
www.cdc.gov/ncidod/diseases/hepatitis/c/index.htm

National Clearinghouse for Alcohol & Drug Information
ncadi.samhsa.gov

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
www2.niddk.nih.gov

National Digestive Diseases Information Clearinghouse (NDDIC)
digestive.niddk.nih.gov/index.htm

National Institutes of Health, National Cancer Institute - Liver Cancer
www.cancer.gov/cancer_information/cancer_type/liver

NIDDK - Liver Disease Research Branch
www2.niddk.nih.gov/AboutNIDDK/ResearchAndPlanning/Liver_Disease/default.htm

Veterans Health Administration
www.va.gov/vbs/health

Department of Veterans Affairs, National Hepatitis C Program
www.hepatitis.va.gov

Medical/Research Organizations & Services

B Free CEED Hepatitis B Center at the NYU Center for the Study of Asian American Health
hepatitis.med.nyu.edu

Biliary Atresia Research Consortium
www.barcnetwork.org

Cholestatic Liver Disease Consortium
rarediseasesnetwork.epi.usf.edu/clic/index.htm

Columbia University Gastroenterology Web
cpmcnet.columbia.edu/dept/gi

Johns Hopkins University School of Medicine, Center for Viral Hepatitis
www.hopkinsmedicine.org/Medicine/viralhep

University of Chicago Hospitals, Liver Study Unit
liver.bsd.uchicago.edu

Children's Hospital of Philadelphia, Vaccine Education Center
www.vaccine.chop.edu

Thomas E. Starzl Transplantation Institute
sti.upmc.com

Texas Children's Liver Center
www.texaskidsliver.org

LiverDisease.com - Homepage of Dr. Melissa Palmer
www.liverdisease.com

University of Pittsburgh Medical Center, Center for Liver Diseases
gastroenterology.upmc.com/UPP/LiverDiseasesCenter.htm

The Hepato-site: The Center for Hepatitis Treatment & Research (University of Cincinnati)
www.hepato-site.net

Page updated: June 16th, 2009