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Welcome to the August 2016 edition of the Liver Lowdown newsletter. Click on the links below and check out the featured stories for the month!
Heroes inspire us with their bravery, fighting seemingly insurmountable obstacles and changing the world for the better. American Liver Foundation’s heroes are those who battle liver disease on a daily basis, including patients, family members, doctors and researchers. Their unwavering dedication provides hope and inspires our work. ALF’s 2015 Annual Report takes a look at some of the lives and journeys of those everyday liver heroes, who raised their voices for liver health. To read about our heroes and their stories, visit our Annual Report page.
Stuart never thought that his 26th birthday would bring with it a diagnosis of primary sclerosing cholangitis (PSC). Despite this devastating diagnosis, Stuart decided to take charge and join ALF’s Liver Life Challenge to raise money and increase awareness and research efforts for PSC. Stuart says, “the many lessons I have learned throughout life have taught me to think clearly, stay positive, and take action when faced with adversity.” Read about Stuart’s incredible journey and his climb to Mt. Shasta, the second largest volcano in America, here.
Carolyn is no stranger to primary biliary cholangitis (PBC). Diagnosed with PBC at 32 years old, Carolyn was able to receive a living donor transplant in 2006 and recently celebrated her 10th year post transplant! Carolyn understands better than anyone the challenges of dealing with PBC. This is why she volunteers as a counselor and spends her time talking about her experience with PBC in ALF programs, such as our PBC educational webinar. Carolyn says, “With education and support, PBC patients can have a full life. I tell people, don’t live in the past and don’t fear the future.” Learn how Carolyn is inspiring hope to PBC patients here.
From clinical research and patient care to outreach and advocacy, Dr. Doa tackles hepatitis B from every direction. Dr. Doa’s commitment to ending hepatitis B is personal; he has had family members infected with hepatitis B and is highly aware of the prevalence of liver disease in the Asian-American community. He is an ALF research grant awardee. But he isn’t content with battling liver disease on just a scientific level. “At the local level in Texas, at the national level here, and in my home country of Vietnam I am trying to bring people together to raise awareness and provide more of a medical and community infrastructure for disease education and support.” Check out Dr. Doa’s truly inspiring work as a liver disease researcher and advocate here!
All-star veteran musicians Martyn LeNoble, Christian Eigner, Mark Lanegan and Dave Gahan recently collaborated to pay tribute and bid farewell to the late, great David Bowie with a cover of the Bowie/Moroder song, "Cat People (Putting Out Fire). 100% of the proceeds will go to the American Liver Foundation and benefit the liver community. Learn more about their efforts here and download the single today!
© Copyright 2017 American Liver Foundation. All Rights Reserved. The American Liver Foundation is included in CharityWatch’s 2016 list of Top-Rated Charities and is a Member of the World Hepatitis Alliance.