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Liver Lowdown


ANNOUNCEMENTS


  • The American Liver Foundation received a generous grant from Gilead Sciences to establish a National Patient Advisory Committee (NPAC). The first members of the NPAC include patient advocates who are living with or were cured of hepatitis C. These advocates will help guide and participate in communications activities around hepatitis C and offer hope to others living with the disease.

  • ALF is pleased to announce that Gilead Sciences and Intercept have provided grants to help the organization increase its efforts to provide patients, families and all who are affected by liver disease, with information about liver disease and supportive services. Gilead’s funding will support ALF’s National Helpline 1-800-GO-LIVER (1-800-465-4837) and Intercept’s funding will help ALF produce additional educational materials and offerings about primary biliary cirrhosis.

  • Lynn Gardiner Seim, MSN, RN, has been promoted to executive vice president and chief operating officer at the American Liver Foundation. In her new role, Ms. Seim will be responsible for overseeing the organization’s internal and external operations, including development, communications, national programs and field operations. Most, recently Ms. Seim was vice president of programs where she led the organization’s national education, advocacy, support services, research, communications and development initiatives, supporting a network of 16 divisions located throughout the country.

  • The American Liver Foundation was one of the many health and advocacy organizations that signed on to an official statement that calls for a coordinated effort among pharmaceutical companies, advocacy organizations, government, private and public payers, individuals and healthcare workers to work together to ensure that everyone living with hepatitis C who wants to be treated has access to treatment without barriers. The statement, developed by the National Viral Hepatitis Roundtable, as well as a list of the other supporting organizations, healthcare providers and individuals can be viewed at http://nvhr.org/content/HCVsignon.

  • The American Liver Foundation, along with the National Hepatitis B Task Force, endorsed an initiative urging hospitals and birthing centers around the country to provide a universal birth dose of the hepatitis B vaccine. The Immunization Action Coalition, a national organization that aims to increase immunization rates and to prevent disease, is leading the initiative.

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Page updated: November 3rd, 2014