For Patients Caregiver Tips and Advice For Medical Professionals

Local Resources

Browse the tabs below to find support groups, clinical trials, and other area resources that may help you. A downloadable resource guide is also available.


Life with Primary Biliary Cholangitis

Join the PBC Support Group Facebook page for weekly discussions and presentations on different prominent topics in PBC!

December 1st, 2017 – December 31st, 2017 (9:00 am – 10:00 am) – $free

Contact: Jamie Chitwood (Email)
Phone: 314-356-2300 | More Information

Click here to join the PBC Support Group facebook page to learn about PBC resouces, information, and gain community support!

The live discussions and chat sessions will occur every Wednesday starting 5/3/17 from 9am-10am and 7pm-8pm. The information and discussions will remain posted for those who are unable to attend live!



Kansas City, Kansas

Liver Transplant Support Group

Kansas University Medical Center
Wyandotte Room
Directions
3901 Rainbow Boulevard
Kansas City, KS 66160

Meets: First Wednesday of each month, 7 PM

Not an ALF-affiliated support group

Contact Greg for more information.

Phone: (816) 455-2940


Wichita, Kansas

Hepatitis C Support Group

Immanuel Baptist Church – Directions
Room 252
1415 S. Topeka
Wichita, KS

Meets: 3rd Thursday of Every Month from 6-8 PM

Contact Carol Harms for more information.

Phone: 1.316.269.2495
Email: carolharms87@yahoo.com


St. Louis, Missouri

Pre & Post Liver Transplant Support Group

Barnes-Jewish Hospital
Center for Advanced Medicine Building
Directions
4921 Parkview Place
3rd Floor, Farrell Conference Room #2
St. Louis, MO 63110

Meets: Third Wednesday of each month, 6:30 – 8 PM

Not an ALF-affiliated support group

Contact Ada Sengchannavong, LMSW for more information.

Phone: (314) 362-0319


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


University of Missouri Healthcare

Randomized, Open-Label, Multicenter, Controlled, Pivotal Study to Assess Safety and Efficacy of ELAD in Subjects w/ AILD

The primary objective of the study is to evaluate safety and efficacy of ELAD with respect to overall survival of subjects with a clinical diagnosis of alcohol-induced liver decompensation (AILD) through at least Study Day 91.

Contact Susan Pew, RN Study Coordinator for more information.

Phone: 573-882-4758
Email: pews@health.missouri.edu


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