Resources in Our Area

Albuquerque, New Mexico Hepatitis C Support Group

University of New Mexico Hopsital - (Directions)
2211 Lomas Blvd. NE
Albuquerque, NM

Meets: 3rd Tuesday of each month, 5:00pm - 6:00pm

Meets in the Cafeteria, 2nd Floor, Manzano Room

Contact Louise Smith or Lucy Yates (Louise Smith or Lucy Yate) for more information.

Phone: 505-272-1453
Email: Albuquerque, New Mexico Hepatitis C Support Group

Albuquerque, NM Hepatitis C Support Group

Meets: Takes phone calls from friends and family and directs them to other support groups

Contact Janet Brown for more information.

Phone: 505-304-1839

Albuquerque, NM Transplant Support Group

University of New Mexico Hospital - (Directions)
2211 Lomas Boulevard, NE
Albuquerque, NM

Meets: Meets as needed

Meets in the Cafeteria, 2nd Floor

Contact Irene for more information.

Phone: 505-881-6080

Austin Liver Support Group

Central Texas Regional Blood and Tissue Center - (Directions)
4300 N. Lamar Boulevard
Austin, TX 78701

Meets: third Tuesday of every month, noon-2pm

Email: Austin Liver Support Group

Carlsbad, NM Hepatitis C Support Group

- (Directions)
Library Annex Halagueno Park
Carlsbad, NM

Meets: 2nd Tuesday of every month

Contact Mickey Compton for more information.

Phone: 505-302-3061 (Note:

Farmington, NM Hepatitis Support Group

- (Directions)
2325 E 30th Street
Farmington, NM

Meets: 2nd Wednesday of every month, 5:30pm

Contact Kelly Thompson for more information.

Phone: 505-327-0773 (number

Farmington, NM Hepatitis Support Group

Life Course Center
Farmington, NM

Meets: 2nd Tuesday of every month, 5:30pm

Contact Charles Hoffman for more information.

Grants, NM Hepatitis C Support Group

Cibola Counseling Center - (Directions)
PSR Building 906 N 1st Street Grants
Grants, NM

Meets: 1st Wednesday of every month, 6:00pm

Contact Randell for more information.

Phone: 505-287-4059 (WRONG

Hepatitis C Mayo Support Group

Mayo Clinic Hospital - (Directions)
5th Floor West - Room 107
5777 East Mayo Boulevard
Phoenix, AZ 85054

Meets: Third Wednesday of every month 6:00pm-7:30pm

Contact Debbie James, MA for more information.

Phone: 480-342-1454

Parent Support Group

Texas Children's Liver Center
Houston, TX

Contact Harriet Spain for more information.

Phone: 713-206-6807
Web: www.texaskidsliver.org
Email: Parent Support Group

PBC Support Group

Mayo Clinic Hospital - (Directions)
5777 East Mayo Blvd., Room 1-220
Phoenix, AZ 85054

Meets: Third Monday of every other month, 5:30pm - 6:30pm

Contact Lynn DeRue for more information.

Phone: 480-860-4898

PBC_Digest: An Online Support Group

The Primary Billiary Cirrhosis Organization aka PBCers is a wonderful source of support and education for primary biliary cirrhosis (PBC) patients, family members, friends and other autoimmune liver disease patients. Formed in 1996, the PBCers is the largest online PBC support group with almost 3,000 members worldwide.

As a group, we discuss medical information, pain management, medications, research, ask questions, transplantation, vent our anger & fears, speak freely on the ups and downs of daily living, share our personal experiences and build lasting friendships.

Read the guidelines for joining.

Contact Linie Moore for more information.

Web: www.pbcers.org

Phoenix Support Group

Banner Good Samaritan Medical Center - (Directions)
Sandstone Conference Room
1111 East McDowell
Phoenix, AZ 85006

Meets: First Tuesday of each month, 6:30pm

Parking validated for visitor parking garage.

Contact Charlie Thomas, CISW - Julie LaMantia, MSW - Toni Ruiz, MSW or Robin Opp for more information.

Phone: 602-251-2700

Phoenix Support Group

Carl T. Hayden VA Medical Center - (Directions)
650 East Indian School Road
Phoenix, AZ 85012

Meets: 4th Tuesday of each month, 1:00pm

Contact Libby Evanich, NP for more information.

Phone: 602-277-5551, ext: 6129

Prescott Support Group

Prescott Public Library
Prescott, AZ

Meets: 3rd Wednesday of each month, 6:30pm to 7:30pm

Meets in the "Bump Room" on the main floor.

Contact Maggie Richarz for more information.

Phone: 928-420-9679, Wed-Fr

St. Luke's Liver Center Support Groups

Web: www.texasliver.org/community/groups/houston.htm

Tucson Support Group

Information and Referral Services - (Directions)
3130 N Dodge Blvd.
Tucson, AZ 85716

Meets: 1st Tuesday of each month, 12:00pm

Contact John Stevens for more information.

Phone: 520-881-8382

Tucson Support Group

Unitarian Universalist Church - (Directions)
4831 E 22nd ST
Tucson, AZ

Meets: 4th Tuesday of Each Month, 5:30pm to 7:00pm

Contact John Stevens for more information.

Phone: 520-881-8382

Yuma Support Group

The Science of the Mind Church - (Directions)
8th Street and 2nd Avenue
Yuma, AZ 85364

Meets: Last Tuesday of each month, 6:30pm

Contact Kat Summerchild for more information.

Advanced Liver Therapies

St. Luke's Center for Liver Disease
Houston, TX 77030

PBC (Primary Biliary Cirrhosis)

1. Modified bile acid (INT-747 study drug) for subjects currently taking URSO

Main Inclusion criteria: Stable dose of ursodeoxycholic acid (URSO®, UDCA) for at least 6 months prior to screening Two of the following 3 criteria must be present: Elevated Alk phos, liver bx consistent with PBC or +AMA.

Main Exclusion Criteria: Administration of the following drugs at any time during the 3 months prior to screening for the study: colchicine, methotrexate, azathioprine, or systemic corticosteroids.

2. Modified bile acid (INT-747 study drug) for subjects for patients not taking URSO

Main Inclusion criteria: dose of ursodeoxycholic acid (URSO®, UDCA) for at least 6 months prior to screening OR no exposure to URSO within the past 3 monthsTwo of the following 3 criteria must be present: Elevated Alk phos, liver bx consistent with PBC or +AMA.

Main Exclusion Criteria: Administration of the following drugs at any time during the 3 months prior to screening for the study: colchicine, methotrexate, azathioprine, URSO, or systemic corticosteroids.

HEP C

1. (Naïve or non-responders) – Yeast based immune system stimulant (inj) + peg + rib.

Main Inclusion Criteria: Chronic hepatitis C infection with genotype 1Non-Responder Definition:• Poor responders - a subset of non-responders who achieved > 1 log10 but < 2 log10 reduction in HCV RNA after a minimum of 12 weeks of therapy.• Partial responders – a subset of non-responders who achieve at least a 2 log10 reduction in HCV RNA by 12 weeks, but do not achieve an end of treatment response

Main Exclusion Criteria:• Null response to prior IFN plus ribavirin therapy, defined as received at least 12 weeks of interferon-based treatment with < 1 log10 reduction in viral load;• Subjects treated with more than 1 complete hepatitis C regimen • Subjects that required a significant dose reductions• Subjects that required growth factors • Body weight >275 pounds• Cirrhosis

2. Hep C – (Effect of treatment with Pegasys®/Copegus® with or without concomitant pioglitazone (Actos®) on early viral kinetics in treatment-naïve patients with chronic hepatitis C (genotype 1 HCV infection) and insulin resistance)

Main Inclusion Criteria:• Naïve and geno 1• Insulin resistance (i.e. fasting blood glucose > 100 mg/dL, or fasting insulin > 10 IU/mL)• Has not received insulin treatment during the prior 2 weeks and has a fasting plasma glucose < 240 mg/dL. Oral hypoglycemic agents are allowed if stable for ≥ 2 months prior to randomization.

Main Exlusion Criteria: Type-1 diabetes or cirrhosis.

Contact Jana Lee, RN, CCRC; Gerald Brown, RN for more information.

Phone: 832-355-8966 (832-683-5814)
Email: Advanced Liver Therapies

ClinicalTrials.gov

A service of the U.S. National Insitutes of Health, ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.

Persons with HBV and cirrhosis:
Efficacy and Safety of Entecavir Versus Adefovir in Subjects Chronic Hepatitis B

Yale University School of Medicine
Dr. Joseph K. Lim, M.D.

Efficacy and Safety of Entecavir Versus Adefovir in Subjects Chronically Infected with Hepatitis B Virus and Evidence of Hepatic Decompensation

Contact Hong Chau for more information.

Phone: (203) 737-6063

Fatty Liver/Hepatitis C Clinical Trial

Brooke Army
Fort Sam Houston, TX

Contact Stephen A Harrison, MD (Brooke Army Medical Center) for more information.

Phone: 210-916-5553
Web: http://clinicaltrials.gov/ct/show/NCT00207311;jsessionid=13773F43841DD51AEF3451F2AEB9B30C?order=49

Rare Cholestatic Liver Disease Clinical Study

Do you or somone you know suffer with a rare cholestatic liver disease. Do you have questions or concerns and want to know more? This NIH funded pediatric trial goes up to 25 years of age. It is called the CLiC trial.

Phone: 832-824-3754
Web: rarediseasesnetwork.epi.usf.edu/clic/index.htm

There are no organizations in this category.

Liver Health Today Magazine (formerly Hepatitis Magazine)

- (Directions)
P.O. Box 667399
Houston, TX 77266

Liver Health Today is the only national magazine dedicated to people with hepatitis B and C.

Contact Brian Tutt for more information.

Phone: (713) 808-9536
Web: http://www.liverhealthtoday.org
Email: Liver Health Today Magazine (formerly Hepatitis Magazine)