Resources in Our Area

Central Indiana:
ARK (Always Reflecting Kindness)

Chapel Rock Christian Church - Directions
2020 N. Girls School Road
Indianapolis, IN 46214

Meets: Third Saturday of each month 12:00 noon

ARK meetings allow Hepatitis C sufferers to learn how to live with their disease. Attendees are welcome to express how they feel in the company of other sufferers and their loved ones. Each meeting features a selected speaker on a pertinent topic. Lunch is provided.

Contact Mike Rickey for more information.

Phone: (317) 894-4429

Indiana:
Hepatitis C Indiana: a social networking site for those affected by Hepatitis C

http://hep-c-indiana.ning.com/

Hepatitis C Indiana is a social networking site designed to provide a platform where people with Hepatitis C, their family and friends can connect. The site includes links to Hep C groups, forums on a variety of topics relating to Hep C, resources, events, and so much more. This is a site created by and for people with Hepatitis C.

Click here to visit this site, or copy and paste http://hep-c-indiana.ning.com/ into your Web browser's address bar.

Youngstown, Ohio:
Hepatitis C Support Group

St. Elizabeth Health Center - Directions
1044 Belmont Avenue
Private Dining Room
Youngstown, OH 44501

Meets: Quarterly on Mondays at 7:00 p.m.

This support group for patients with Hepatitis C and family members and meets quarterly. (February, May, August, November) at 7:00 p.m. For more information, call Mariann at (330) 480-6362.

Contact Mariann Pacak for more information.

Phone: 330-480-6362

Greater Cincinnati Area:
Hepatitis Education and Support

Holmes Hospital - Directions
Eden and Albert Sabin Way
Cincinnati, OH 45220

Meets: 3rd Wednesday of Month at 7 p.m.

Phone: (877) 548-3730
Email: nsutton@livefoundation.org

Auburn, Indiana:
Hip on Hep C

Auburn, IN

Meets: Third Friday of the month 6pm

Contact Christie Soaper for more information.

Phone: (260) 927-8180
Email: ladytruckr@mchsi.com

Central Indiana:
Indiana University Transplant Support Group

Indiana University Hospital Room 4642 - Directions
550 N. University Blvd., Room 4642
Indianapolis, IN 46202

Meets: 3rd Thursday of each month, 12:30 - 1:30 p.m.

This group is a monthly meeting of patients, families, and caregivers at any stage pre- and post-transplant. The group meets for education, emotional support and information exchange related to organ transplant. Meetings are facilitated by the staff psychologist and/or social worker to help provide information on:

• Learning about the transplant process
• The personal adjustment experience for patients
• Coping needs of caregivers
• Stress-management strategies for patients and their families

The meetings are free, and no registration is required. All families and patients who have/anticipate any type of organ transplant are encouraged to attend.

Contact Pat Wilkins (Admin. Asst. for Dr. Anne Mary Montero) for more information.

Phone: (317) 944-7320

Cleveland:
Inner-City Support Group for Hepatitis C

Goodrich Gannet Neighborhood Center Inc. - Directions
1368 E. 55th St.
Cleveland, OH 44103

Meets: Last Saturday of each month from 11:30 a.m. to 12:45 p.m.

Contact Rev. Darnella Walker-Allen, Pastor for more information.

Phone: 216-965-1440
Web: www.innercitysupportforhepatitisc.org
Email: revdawalker@yahoo.com

Greater Louisville Area:
L.A.S.H. for Hep C

Gilda's Club - Directions
633 Baxter Avenue
Louisville, KY 40204

Meets: 2nd Wednesday of each month 6:30pm - 8:00pm

L.A.S.H. for Hep C (Louisville area support and hope for hep C) serves individuals in the Louisville and southern Indiana area.

*Please make note of new meeting location*

Contact Mary or Kathy for more information.

Phone: Mary: 502-472-4992 (Kathy : 502-643-7428)
Web: www.lashforhepc.net
Email: lash4hepc@aol.com

Northeast Ohio:
Liver Disease/Transplant Support Group

Cleveland Clinic

Meets: Quarterly

The group meets quarterly at the Cleveland Clinic. For more information on meeting times, topics of discussion or location and other group details, call 216-445-8473 for more information.

Contact Jacqui LeMaster (Cleveland Clinic Liver & Intestine Transplant) for more information.

Phone: 216-445-8473

Greater Louisville Area:
Organ Transplant Support Group

Jewish Hospital (transplant center conference room) - Directions
200 Abraham Flexner Way
Louisville, KY 40202

Meets: 2nd Monday of every month at 9 am

The Jewish Hospital Organ Transplant Support Group meets the 2nd Monday of each month. The meetings are held at Jewish Hospital on the 3rd floor in the transplant center conference room.

Contact Kristen Bilinksi (Support Group Coordinator) for more information.

Phone: 502-560-8452
Email: kristen.bilinski@jhsmh.org

Ohio:
PBC Support Group

Rotates to various locations in Ohio

Meets: Bi-monthly meetings, call for information

Phone: 216-642-0668

Central Indiana:
Pediatric Liver Support Group

Riley Hospital for Children - Directions
Riley Hospital for Children
702 Barnhill Dr. Indianapolis, IN 46202
Indianapolis, IN 46202

Meets: 3-5 pm. dates listed below:

Parents and their children with biliary atresia, liver transplants, metabolic liver disease, hepatitis B and C, Alagille's syndrome, and other liver diseases attend. An educational topic is discussed for 20 to 30 minutes and then everyone socializes. Refreshments are provided. Discussion topics have included understanding blood tests, diet and liver disease, impact of chronic disease on siblings, liver transplantation, etc.

2009 Schedule:

January 13, 2009
April 28, 2009
July 21, 2009
October 20, 2009

Location:

Riley Outpatient Center Conference Room B (lower level)

Contact Sharon McPheeters (Pediatric GI) for more information.

Phone: (317) 278-5809

Northeast Ohio:
Pre and Post Transplant Support Group

University Hospitals, Cleveland - Mather Pavillion 1735 - Directions
11100 Euclid Avenue
Cleveland, OH 44106

Meets: Last Wednesday of every other month at 3:30pm (Jan, Mar, May, July, Sept, Nov)

This support group is open to all liver transplant patients who are listed or who are post-transplant. Patients from all area hospitals are welcome. All meetings include an expert speaker on a relevant topic. Call for speaker topics and details.

Snacks will be provided. Please bring your parking ticket to the meeting for validation.

For more information, contact Kristy Kast, LISW-S, at kristy.kast@uhhospitals.org or by phone at (216) 983.5234.

Contact Kristy Kast, LISW-S (University Hospitals) for more information.

Phone: (216) 983-5234

INTRODUCTION TO CLINICAL TRIALS – An American Liver Foundation Guide

The American Liver Foundation’s Introduction to Clinical Trials guide (link to http://www.liverfoundation.org/support/supportguides/) contains information on what a clinical trial is, who is involved, how the process works, potential risks and benefits, and much more.

For information on clinical trials in your area:

• Search the National Institutes of Health’s clinical trials website
• Talk to your healthcare provider about clinical trials that you may be eligible for
• Contact local medical institutions to learn about upcoming clinical trials

Web: http://www.liverfoundation.org/support/supportguides/

LIVER TRANSPLANT

The American Liver Foundation’s website has general information on liver transplants.

For information on transplant centers in your area, visit the Organ Procurement and Transplantation Network’s (OPTN) website.

Web: http://www.liverfoundation.org/abouttheliver/info/transplant/

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