Resources in Our Area

Columbia, Mo - Mid-Missouri Liver Transplant Support Group

Harry S. Truman Memorial Veterans Hospital, Room D237 - Directions
800 Hospital Drive
Columbia, MO 65201

Meets: First Wednesday of each month, 2-3 PM

Not an ALF-affiliated support group

Contact Suzanne Opperman for more information.

Phone: (573) 814-6334

Immanuel Baptist Church

Wichita, KS - Directions
1415 S. Topeka
Room 252
Wichita,, KS

Meets: 3rd Thursday of Every Month from 6-8 PM

Hepatitis C support group

Contact Carol Harms for more information.

Phone: 1.316.269.2495
Email: carolharms87@yahoo.com

Kansas City, KS - Liver Transplant Support Group

Kansas University Medical Center, Wyandotte Room - Directions
3901 Rainbow Boulevard
Kansas City, KS 66160

Meets: First Wednesday of each month, 7 PM

Not an ALF-affiliated support group

Contact Greg for more information.

Phone: (816) 455-2940

Missouri Hep C Alliance- Support Group

Missouri
Columbia, Hannibal, Jefferson City, Lake of the Ozarks, Sedalia and Springfield, MO

Meets: TBD

PLEASE NOTE : There are no established support groups in these cities/areas, however, if enough interest is generated, Bruce will be able to get some meeting times set up. Please contact Bruce Burkett at the above number if you are interested in a Hepatits C support group in any of the following cities: Columbia, Hannibal, Jefferson City, Lake of the Ozarks, Sedalia or Springfield, MO.

Contact Bruce Burkett for more information.

Phone: Toll Free - 866.434.1975 (Local: 573.442.6599)

Springfield, IL - Hepatitis C Support Group

Springfield Department of Public Health - Directions
1415 E. Jefferson Street
Springfield, IL 62703

Meets: Third Monday of each month, 6-8:00 PM

Not an ALF-affiliated support group

Contact Don Hunt for more information.

Phone: (217) 789-2182

St. Louis, MO - Hepatitis Support Group

St. Louis Gastroenterology Consultants, P.C., - Directions
10012 Kennerly Road, Suite 101
St. Louis, MO 63128

Meets: Second Thursday every other month, 5-7 PM

Not an ALF-affiliated support group

Contact Mary Anne Gadell for more information.

Phone: (314) 543-5200 x2931

St. Louis, MO - Liver Transplant Support Group

St. Louis University Hospital, Learning Resource Center - Directions
3635 Vista
St. Louis, MO 63104

Meets: Fourth Wednesday of each month, 1 PM

Not an ALF-affiliated support group

Contact Betsy Mackey for more information.

Phone: (314) 577-8867

St. Louis, MO - Pre & Post Liver Transplant Support Group

Barnes-Jewish Hospital, Center for Advanced Medicine Building - Directions
4921 Parkview Place
3rd Floor, Farrell Conference Room #2
St. Louis, MO 63110

Meets: Third Wednesday of each month, 6:30 - 8 PM

Not an ALF-affiliated support group

Contact Kelly Dougherty, MSW for more information.

Phone: (314) 362-1956

St. Louis, MO - Veteran's Hepatitis C Support Group

VA Medical Center-Jefferson Barracks Division - Directions
1 Jefferson Barracks Drive
Building 51, Room 1E 145
St. Louis, MO 63125

Meets: Meets every Thursday, 2-3 PM

Not an ALF-affiliated support group

Contact Mary D'Angelo for more information.

Phone: (314) 894-6598

St. Robert, MO - Mid-Missouri Hepatitis C Support Group

General Leonard Wood Army Community Hospital
St. Robert, MO 65473

Meets: Third Monday of each month, 7 PM

Not an ALF-affiliated support group

Contact Chuck & Joyce Lynn for more information.

Phone: (573) 336-3029
Email: help4hepc@yahoo.com

INTRODUCTION TO CLINICAL TRIALS – An American Liver Foundation Guide

The American Liver Foundation’s Introduction to Clinical Trials guide (link to http://www.liverfoundation.org/support/supportguides/) contains information on what a clinical trial is, who is involved, how the process works, potential risks and benefits, and much more.

For information on clinical trials in your area:

• Search the National Institutes of Health’s clinical trials website
• Talk to your healthcare provider about clinical trials that you may be eligible for
• Contact local medical institutions to learn about upcoming clinical trials

Web: http://www.liverfoundation.org/support/supportguides/

LIVER TRANSPLANT

The American Liver Foundation’s website has general information on liver transplants.

For information on transplant centers in your area, visit the Organ Procurement and Transplantation Network’s (OPTN) website.

Web: http://www.liverfoundation.org/abouttheliver/info/transplant/

Alagille Syndrome Alliance

- Directions
10500 SW Starr Drive
Tualatin, OR 97062

The purpose of the Alliance is to serve as the main networking resource and source of
information for people with AGS, their families, friends, and health care providers. The Alliance also is dedicated to increasing public awareness of AGS and supporting research efforts on behalf of the AGS community.

Contact Cindy L. Hahn (Director) for more information.

Phone: 503-885-0455
Web: http://www.alagilles.org

Alliance of Genetic Support Groups

- Directions
4301 Connecticut Avenue, NW
Suite 404
Washington, DC 20008

Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.

With a 20-year history as a 501(c)(3) not-for-profit organization, Genetic Alliance is dedicated to improving the quality of life for everyone living with genetic conditions. We are committed to capacity building in all communities. The technical assistance we provide to advocacy organizations results in measurable growth: increased funding for research, access to services, and support for emerging technologies.

Phone: 202-966-5557 (800-336-4363)
Web: http://geneticalliance.org
Email: info@geneticalliance.org

Alpha-1 Association

- Directions
8120Penn Avenue South
Suite 549
Minneapolis, MN 55431

The Alpha-1 Association is a member-based, nonprofit organization founded in 1991 to identify those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy, and research.

The Association has over 70 volunteer-led support groups around the U.S. To find a support group, please visit the pull-down menu at the top of this page to select your state or contact Cathey Horsak at 1-877-346-3212 or chorsak@alpha1.org

The Alpha-1 Association conducts a National Education Conference every year. Along with the Alpha-1 Foundation, the Alpha-1 Association cosponsors Alpha-1 Education Days and Regional Support Group Meetings throughout the U.S.

The Advocacy Program focuses on access to care; maintaining and extending Medicare benefits; genetic non-discrimination; increasing public health funding; traveling with supplemental oxygen; organ allocation for lung transplantation and includes working with the Congressional COPD Caucus to further our goals.

Contact Marleen Erven (Executive Director) for more information.

Phone: 952-703-9979 (800-521-3025)
Web: http://www.alpha1.org
Email: mserven@alpha1.org

Liver Disease-Hepatitis Magazine

Web: http://www.hepatitismag.com

Liver Disease-National Organization of Rare Disorders (NORD)

Web: http://www.raredisease.org

Liver Disease-Primary Sclerosing Cholangitis (PSC Literature)

Web: http://www.psc-literature.org

The Salvation Army-Kansas and Western Missouri Division

Kansas and Western Missouri Division - Directions
3637 Broadway
Kansas City, MO 64111

Phone: 816-756-1455

Missouri except Kansas City and Southern Illinois:
The Salvation Army-Midland Division

Midland Division - Directions
1130 Hampton Avenue
St. Louis, MO 63139

The Midland Division of The Salvation Army, is headquartered in St. Louis, Missouri. It encompasses the state of Missouri, with the exception of Kansas City and six surrounding counties, and southern Illinois

The Army has a strong presence across the Division, with 29 Corps Community Centers; five social service institutions (with 615 beds) in St. Louis; 12 shelters (with 252 beds) outside of St. Louis; and 148 service units (local volunteer units) that are strategically located across the two states.

The Salvation Army's services literally touch people from the cradle to the grave. For example, in St. Louis, after-school programs and day camps serve dozens of children each day, while Booth Manor provides 73 residential units for low-income senior citizens

The Salvation Army spent more than $36 million on service in the Midland Division last year. It is a cost-efficient organization.In St. Louis, for example, 86 cents of every dollar donated goes directly to local programs and services

Phone: 314-646-3000
Web: http://www.usc.salvationarmy.org/usc/www_usc_midland.nsf/vw-dynamic-index/1823CD200BAB3A7A8025721700