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Resources in Our Area

Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by an American Liver Foundation volunteer. Some support groups are facilitated by 3rd party organizations and individuals in this region.

Greater Pittsburgh PBC Support Group

Panera Bread-VIP Room
Waterworks Mall

Meets the second Tuesday of each month at Noon-weather permitting

Contact Ellen Kerber for more information.

Phone: 724.863.3126
Email: Greater Pittsburgh PBC Support Group

Westmoreland County:
Greensburg Area Support Group

Hempfield Church of Christ - Directions
144 Hugh Black Road
Greensburg, PA 15601

Meets: 6:30pm

Living with Liver Disease? Join our Support Group!

Our support group meets on the 3rd Monday of every other month. The remaining meeting dates for 2011 are: July 18, September 19 and November 21.

Our support group provides emotional support and discussion on ongoing research for those living with liver disease.

Family members & caregivers are also encouraged to attend.

Contact Antonia & Mike Redigan for more information.

Phone: 724.423.5948
Email: Greensburg Area Support Group

TRIO (Transplants Recipients International Organization)

UPMC Montefiore LHAS Auditorium, 7th Floor, next to Main Lobby
Pittsburgh, PA 15213

Meets: 1:30-3:30pm

The TRIO-Pittsburgh Chapter has its monthly meetings to discuss chapter issues as well as support meeting so that you may discuss your transplant concerns and issues. Meetings are held on the 3rd Sunday of each month.

Phone: 412-647-7461
Web: http://www.trio-pittsburgh.org/

INTRODUCTION TO CLINICAL TRIALS – An American Liver Foundation Guide

The American Liver Foundation’s Introduction to Clinical Trials guide contains information on what a clinical trial is, who is involved, how the process works, potential risks and benefits and much more.

For information on clinical trials in your area:

Search the National Institutes of Health’s clinical trials website
Talk to your healthcare provider about clinical trials that you may be eligible for
Contact local medical institutions to learn about upcoming clinical trials

Web: http://www.liverfoundation.org/support/supportguides/

LIVER TRANSPLANT

The American Liver Foundation’s website has general information on liver transplants.

For information on transplant centers in your area, visit the Organ Procurement and Transplantation Network’s (OPTN) website.

Web: http://www.liverfoundation.org/abouttheliver/info/transplant/

Alagille Syndrome Alliance

- Directions
10500 W. Star Drive
Tualatin, OR 97062

Phone: 503-885-0455
Web: http://www.alagille.org
Email: Alagille Syndrome Alliance

Alcoholics Anonymous

Pittsburgh Area Central Office - Directions
401 Wood Street
906 Arrot Building
Pittsburgh, PA 15222

Phone: 412.471.7472
Web: http://www.alcoholics-anonymous.org

AlphaNet

- Directions
2937 SW 27th Avenue, Suite 302
Miami, FL 33133

Phone: 305-567-9888 (877-2 CURE A 1)
Web: http://www.alpha.net.org/main.htm

American Association for the Study of Liver Diseases

- Directions
1729 King Street, Suite 200
Alexandria, VA 22314

Phone: 703-299-9766
Web: http://www.aasld.org
Email: American Association for the Study of Liver Diseases

American College of Gastroenterology

- Directions
PO Box 342260
Bethesda, MD 20827

Phone: 301-263-9000
Web: http://www.acg.gi.org

American Hemochromatosis Society

- Directions
4044 W. Lake Mary Blvd.
Unit #104, PMB416
Lake Mary, FL 32746

Phone: 407-829-4488 (888-655-IRON)
Web: http://www.americanhs.org
Email: American Hemochromatosis Society

American Society for Gastrointestinal Endoscopy

- Directions
1520 Kensington Road, suite 202
Oak Brook, IL 60523

Phone: 630-573-0600
Web: http://www.asge.org

AmVets

AmVets National Headquarters - Directions
4647 Forbes Blvd.
Lanham, MD 20706

Phone: 301-459-9600 (877-726-8387)
Web: http://www.amvets.org
Email: AmVets

Biliary Atresia & Liver Transplant Network

Web: http://www.transweb.org

Biliary Atresia Research Consortium

Web: http://www.barcnetwork.org

Catholic Charities Free Clinic

- Directions
212 Ninth Street, 3rd Floor
Pittsburgh, PA 15222

Contact Diane Redington for more information.

Phone: 412.456.6911

Children's Liver Alliance

Web: http://livertx.org

Children's Liver Association for Support Services

- Directions
27023 McBean Parkway, #126
Valencia, CA 91355

Phone: 877-679-8256
Web: http://www.classkids.org

Children's Liver Disease Association

36 Great Charles Street
Birmingham, B3 3JY, United Kingdom

Phone: +44 (0) 121 212 3839
Web: http://www.childliverdisease.org
Email: Children's Liver Disease Association

Children's Organ Transplant Association

Web: http://www.cota.org

Cholestatic Liver Disease Consortium

Web: http://www.rarediseasenetwork.epi.usf.edu/clic/about/index.htm

Crohn's & Colitis Foundation of America

- Directions
5809 S. Aiken Avenue, Suite 220
Pittsburgh, PA 15232

Phone: 800-627-6467
Email: Crohn's & Colitis Foundation of America

Metropolitan Pittsburgh:
Family House

- Directions
233 McKee Place
Pittsburgh, PA 15213

Family House, a non-profit corporation operated by a voluntary board of directors, provides a special "home away from home" for patients and/or families who must travel to Pittsburgh for treatment of serious or life-threatening illnesses. Thanks to the generosity and support of the Pittsburgh community, Family House is able to provide a comfortable haven to help our guests through stressful times.

Contact Christie Knott for more information.

Phone: 412-647-7777
Web: http://www.familyhouse.org/index.php
Email: Family House

Hep C Alert

- Directions
660 NE 125th Street
North Miami, FL 33161

Phone: 877-HELP-4-HEP
Web: http://www.hep-c-alert.org

Hep C Connection

- Directions
190 E. Ninth Avenue, Suite 320
Denver, CO 80203

Phone: 800-522-HEPC
Web: http://www.hepc-connection.org

Hepatitis B Foundation

- Directions
700 East Butler Avenue
Doylestown, PA 18901

Phone: 215-489-4900
Web: http://www.hepb.org
Email: Hepatitis B Foundation

Hepatitis Foundation International

- Directions
504 Blick Drive
Silver Spring, MD 20904

Phone: 800-891-0707 (301-622-4200)
Web: http://www.hepfi.org
Email: Hepatitis Foundation International

Immunization Action Coalition

- Directions
1573 Selby Avenue
St. Paul, MN 55104

Phone: 651-647-9009
Web: http://www.immunize.org
Email: Immunization Action Coalition

Iron Disorders Institute

- Directions
2722 Wade Hampton Blvd., Suite A
Greenville, SC 29615

Phone: 864-292-1175 (888-565-IRON)
Web: http://www.irondisorders.org
Email: Iron Disorders Institute

Iron Overload Disease Association

- Directions
433 Westwind Drive
North Palm Beach, FL 33408

Phone: 561-840-8512
Web: http://www.ironoverload.org
Email: Iron Overload Disease Association

Journal of Pediatric Gastroenterlogy & Nurtition

Phone: 800-638-3030
Web: http://www.jpgn.org

Latino Organization for Liver Awareness

- Directions
PO Box 842
Throggs Neck Station
Bronx, NY 10465

Phone: 888-367-LOLA
Web: http://www.lola-national.org

Monthly Liver Lunch

Northside Christian Health Center - Directions
620 East Ohio Street
Pittsburgh, PA 15212

Meets 3rd Wednesday of every month; Noon - 2:00 p.m.

For anyone with questions and concerns about Hepatitis and other liver diseases.
*Free Lunch
*Informative topics about Hepatitis
*Special guest speakers
*Your questions answered

Contact Alison for more information.

Phone: 412.320.2330

National Clearinghouse for Alcohol & Drug Information

- Directions
PO Box 2345
Rockville, MD 20847

Phone: 800-729-6686 (301-468-2600)
Web: http://www.health.org

National Foundation of Infectious Diseases

- Directions
4733 Bethesda Avenue, Suite 750
Bethesda, MD 20814

Phone: 301-656-0003
Web: http://nfid.org
Email: National Foundation of Infectious Diseases

New Horizons

For more informationhttp://tppp.net/pdfs/new_horizons/new_horizon_liver.pdf

Phone: 800-893-1995
Web: http://www.tppp.net

North American Society for Pediatric Gastroenterlogy & Nurtition